July 20, 2015 is one of those days that I will never forget. The morning started out so well and full of promise. My dearest best friend, her husband, and their sweet one year old boy were actually spending the weekend with us. We had just finished up breakfast when I received a message that I had a new test result in my daughter’s my chart account. In the two weeks that had followed this day my sweet daughter had a number of blood tests, met with physicians, and had even had an MRI due to unexplained weight loss and lack of desire to eat. I quickly signed on and scanned through her most recent MRI test results. Then the bad words started to pop out at me like: anomaly, decrease CSF, less than expected for age, etc. All of the sudden my heart sank and I frantically wanted to talk to a doctor. As I continued reading I found the words that would take my world and shake it upside down. Chiari One I frantically hit print and raced to find my husband. He was about